The PSC Partners Patient Registry is a digital platform where basic data on people living with PSC is collected and stored. Data is primarily collected through online surveys completed by the participant living with PSC, or a qualified caregiver.

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Join the Registry to...​

• Complete surveys that confidentially capture your experiences and address key questions in PSC research;

• Document and track your medical history with PSC, including treatments, symptoms, and healthcare providers;

• Elect to receive information about participating in research and clinical trials. You will be notified if you qualify for a study and can choose to contact the study team.

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The PSC Partners Patient Registry is open to everyone with PSC, wherever you are in the world. ​

Parents and caregivers can join on behalf of their children.

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Any information you share is de-identified before sharing with researchers. No patient-identifying data ever leaves the Registry.