News and Announcements

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10 minutes ago

PSC Partners Registry and other Registries: What's the Difference?

This past July, the American Liver Foundation (ALF) announced the opening of a new patient registry. You may be wondering how it compares...

17 minutes ago

Your Powerful Impact Over the Past 10 Years

PSC Partners opened the Patient Registry for enrollment 10 years ago. However, the process of building a Registry began several years...

21 minutes ago

Registry Data Presented at PSC Forum and AASLD’s The Liver Meeting

In November, a PSC Partners contingent, representing both the U.S. and Canada, attended the 8th PSC Forum and the American Association...

28 minutes ago

Clinical Trial News Announced at 2024 PSC Partners Annual Conference

The 20th Anniversary PSC Partners Annual Conference took place in Phoenix, Arizona, on October 18-20, 2024. Throughout the conference...

15 hours ago

Driving Research: Your Data in Publication - 2024

Thanks to your active participation in the Registry, significant progress has been made in PSC research. Four publications using Registry...

Sep 16

PSC Flare or Cholangitis Attack Patient Survey

A new survey is available in the Registry: the PSC Flare or Cholangitis Attack Patient Survey . Why take a survey about PSC...

Sep 9

Winners of the 10th Anniversary Celebration Drawing

A huge THANK YOU! to everyone who has kept the PSC Partners Patient Registry an active and constantly growing beacon of the patient voice...

Winners of the 10th Anniversary Celebration Drawing

Jul 29

Chemomab Announces CM-101 Phase 2 SPRING Trial Results

Three Recent Announcements from: Pliant, NGM, and Chemomab PSC Partners is encouraged by the initial positive data from the CM-101 Phase...

Jul 21

Positive Update on Pliant’s INTEGRIS-PSC Phase 2a Trial

On July 15, 2024, Pliant Therapeutics announced positive results from their Phase 2a INTEGRIS-PSC trial for bexotegrast in treatment of...

Jun 24

New Article on an Adaptive Treatment Strategy for Use of Vancomycin in PSC

The repurposing of approved medications with potential new efficacy in rare diseases is challenging, as these medications are unlikely to...

Jun 21

Expanded Inclusion Criteria for Mirum’s VISTAS PSC Study for Pruritus Treatment

The following is a message from Mirum Pharmaceuticals regarding their VISTAS study for volixibat, a possible new treatment for...

Mar 17

A New Era for the PSC Partners Registry Community

Dear Registry Participants (Current and Future), This year is the 10th anniversary of the PSC Partners Patient Registry, a perfect time...

A New Era for the PSC Partners Registry Community

Sep 29, 2023

Preliminary Results from INTEGRIS-PSC Phase 2a Clinical Trial

Exciting news about the Pliant Therapeutics PSC clinical trial preliminary results from their global INTEGRIS-PSC Phase 2a trial for...

Jul 13, 2023

Health Equity in PSC Survey

Health equity is the state in which everyone has a fair and just opportunity to attain their highest level of health*. The mission of PSC...

Jun 29, 2023

The VIADUCT Newsletter Issue 6

Issue 6 - June 2023 In this issue: From the Registry Director • New CZI Grant Awarded to PSC Partners • Patient Focus Groups Provide...

Jun 23, 2023

PRIMIS (Phase 3 Study of Cilofexor) News from EASL Congress 2023

News from the EASLCongress 2023 meeting in Vienna From the "late-breaking" abstract session on June 24, 2023, results of the pre-planned...

PRIMIS (Phase 3 Study of Cilofexor) News from EASL Congress 2023

Feb 27, 2023

Oral Vancomycin and Insurance Coverage

Survey Results: Oral Vancomycin and Insurance Coverage PSC Partners received a request from patients to survey the PSC patient community...

Oct 29, 2022

The VIADUCT Newsletter Issue 5

Issue 5 - October 2022 Welcome! In this issue: • From the Registry Director • The Clinical Trial Landscape in PSC • Current...

Sep 27, 2022

PRIMIS (Phase 3 Study of Cilofexor) News

Statement From Gilead Sciences on September 27, 2022 Early Termination of Gilead-Sponsored Study GS-US-428-4194: A Phase 3, Randomized,...

May 24, 2022

The VIADUCT Newsletter Issue 4

In this issue: • From the Registry Director • Mini-PFDDs • Patient Registry Video Tour • Help Us Grow & Diversify the Registry! • PSC...

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