News and Announcements

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Dec 1, 2021

The VIADUCT Newsletter Issue 3

Welcome! In this issue: • From the Registry Director • Profile: Dr. Frank Anania of the FDA • Your Registry Data at Work • PSC Partners...

Aug 23, 2021

The VIADUCT Newsletter Issue 2

Dear Registry Participant, Thank you for your participation in the PSC Partners Patient Registry. We are happy to bring the second issue...

Mar 1, 2021

Proof of Concept Phase 2 Trial of IMU-838 with Early Positive Results

A proof-of-concept Phase 2 trial conducted by Mayo Clinic and sponsored by Immunic has shown very early positive results. We hope that...

Jan 28, 2021

Clinical Trials Updated: PLN 74809 and Volixibat

The clinical trials resources page has been updated on 1/27/21 to reflect two clinical trials currently recruiting. PLN 74809: Phase 2a...

Nov 13, 2020

Successful registry appeal garners strong support

On October 6, 2020, the PSC Partners Registry team sent out an email alert regarding a Harvard Brigham and Women’s Hospital nutrition...

Sep 22, 2020

Nutrition Study Recruiting Now (US residents)

Check out this video invitation from PSC nutrition study Principal Investigator Dr. Josh Korzenik to participate in a diet and nutrition...

Aug 21, 2020

Ask the PSC Expert - Dr. Gideon Hirschfield

Joanne Hatchett, PSC Partners Medical Science Liaison, sat down for a Zoom interview with Dr. Gideon Hirschfield. Dr. Hirschfield is the...

Jul 19, 2020

Our New Registry Home!

Welcome to Our Upgraded Registry Site! We are thrilled to welcome you to our new patient registry home. Our growing family of PSC...

May 4, 2020

Expanded Registry Staff

Welcome Sharon Nanz! We are pleased to announce that Sharon Nanz has expanded her role as a member of the PSC Partners staff. Sharon is...

May 3, 2020

COVID-19 and PSC Survey

We are witnessing a surge in COVID-19 registries for liver diseases, but none are PSC-specific. We believe it will be important to...

Apr 30, 2020

The PSC Partners Patient Registry Origin Story

Little did we know that attending a workshop in Washington D.C. in 2010 would be instrumental in moving PSC Partners towards the...

Mar 31, 2020

Welcome to the PSC Partners Patient Registry!

If you or a loved one has the rare liver disease primary sclerosing cholangitis (PSC), you are in the right place! This site was...

Sep 3, 2014

PatientCrossroads Announcement

PatientCrossroads announces the launch of five new patient registries on behalf of leading rare disease advocacy organizations.

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