News and Announcements

Survey Results: Oral Vancomycin and Insurance Coverage PSC Partners received a request from patients to survey the PSC patient community...

Issue 5 - October 2022 Welcome! In this issue:  • From the Registry Director • The Clinical Trial Landscape in PSC • Current...

Statement From Gilead Sciences on September 27, 2022 Early Termination of Gilead-Sponsored Study GS-US-428-4194: A Phase 3, Randomized,...

In this issue: •  From the Registry Director • Mini-PFDDs • Patient Registry Video Tour • Help Us Grow & Diversify the Registry! • PSC...

Welcome! In this issue: • From the Registry Director • Profile: Dr. Frank Anania of the FDA • Your Registry Data at Work • PSC Partners...

Dear Registry Participant, Thank you for your participation in the PSC Partners Patient Registry. We are happy to bring the second issue...

A proof-of-concept Phase 2 trial conducted by Mayo Clinic and sponsored by Immunic has shown very early positive results. We hope that...

The clinical trials resources page has been updated on 1/27/21 to reflect two clinical trials currently recruiting. PLN 74809: Phase 2a...

On October 6, 2020, the PSC Partners Registry team sent out an email alert regarding a Harvard Brigham and Women’s Hospital nutrition...

Check out this video invitation from PSC nutrition study Principal Investigator Dr. Josh Korzenik to participate in a diet and nutrition...

Joanne Hatchett, PSC Partners Medical Science Liaison, sat down for a Zoom interview with Dr. Gideon Hirschfield. Dr. Hirschfield is the...

Welcome to Our Upgraded Registry Site!   We are thrilled to welcome you to our new patient registry home. Our growing family of PSC...

Welcome Sharon Nanz! We are pleased to announce that Sharon Nanz has expanded her role as a member of the PSC Partners staff. Sharon is...

We are witnessing a surge in COVID-19 registries for liver diseases, but none are PSC-specific. We believe it will be important to...

Little did we know that attending a workshop in Washington D.C. in 2010 would be instrumental in moving PSC Partners towards the...

If you or a loved one has the rare liver disease primary sclerosing cholangitis (PSC), you are in the right place! This site was...

PatientCrossroads announces the launch of five new patient registries on behalf of leading rare disease advocacy organizations.