In November, a PSC Partners contingent, representing both the U.S. and Canada, attended the 8th PSC Forum and the American Association for the Study of Liver Diseases (AASLD) The Liver Meeting (TLM) in San Diego.
The PSC Forum, held just prior to TLM, is a multi-stakeholder gathering of researchers, regulators, drug developers, and patients organized by UC Berkeley’s The Forum for Collaborative Research. The agenda included discussion of two current PSC Partners research projects: the WIND-PSC Study and the Acute Cholangitis Survey. The survey was developed by a PSC Forum working group co-chaired by PSC Partners and PSC Support U.K. and conducted, in part, through the PSC Partners Patient Registry. Registry Analyst Brian Thorsen presented an early analysis of the survey data (see slides here).
Following the PSC Forum, PSC Partners exhibited during TLM to extend awareness of its programs and research funding to the many research clinicians attending the meeting from around the world. Throughout the four-day event, meetings were held between PSC Partners and collaborators, potential collaborators, and industry partners.
Two abstracts/posters that included your (de-identified) patient data were presented at TLM and have been added to the Registry website. To ensure your patient experience is represented in these and future analyses, please be sure to complete the surveys offered to you through the Registry!